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Research, engagement and public bioethics:promoting socially robust science

机译:研究,参与和公共生物伦理学:促进社会健全的科学

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摘要

Citizens today are increasingly expected to be knowledgeable about and prepared to engage with biomedical knowledge. In this article, I wish to reframe this 'public understanding of science' project, and place fresh emphasis on public understandings of research: an engagement with the everyday laboratory practices of biomedicine and its associated ethics, rather than with specific scientific facts. This is not based on an assumption that non-scientists are 'ignorant' and are thus unable to 'appropriately' use or debate science; rather, it is underpinned by an empirically-grounded observation that some individuals may be unfamiliar with certain specificities of particular modes of research and ethical frameworks, and, as a consequence, have their autonomy compromised when invited to participate in biomedical investigations. Drawing on the perspectives of participants in my own sociological research on the social and ethical dimensions of neuroscience, I argue that public understanding of biomedical research and its ethics should be developed both at the community level and within the research moment itself in order to enhance autonomy and promote more socially robust science. Public bioethics will have to play a key role in such an endeavour, and indeed will contribute in important ways to the opening up of new spaces of symmetrical engagement between bioethicists, scientists and wider publics-and hence to the democratisation of the bioethical enterprise.
机译:人们越来越期望今天的公民对生物医学知识有充分的了解并准备好参与其中。在本文中,我希望重新设计“公众对科学的理解”项目,并重新强调公众对研究的理解:参与生物医学的日常实验室实践及其相关伦理,而不是具体的科学事实。这并不是基于这样的假设,即非科学家是“无知的”,因此无法“适当地”使用或辩论科学;相反,它以经验为基础的观察结果为基础,即有些人可能不熟悉特定研究模式和伦理框架的某些特殊性,因此,受邀参加生物医学研究时其自主权受到损害。利用我自己在神经科学的社会学和伦理学方面的社会学研究参与者的观点,我认为,应该在社区一级和研究时期内发展公众对生物医学研究及其伦理学的认识,以增强自主性并推广更具社会活力的科学。公共生物伦理学必须在这种努力中发挥关键作用,并且确实将以重要的方式为生物伦理学家,科学家和广大公众之间的对称参与开辟新空间做出贡献,从而为生物伦理企业的民主化做出贡献。

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    Pickersgill, Martyn D;

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  • 年度 2011
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  • 原文格式 PDF
  • 正文语种 eng
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